Medicine and Health

Sexual function in adult patients who have undergone augmentation surgery in childhood: what is really important?

B. B. Marco, M. Hiess, et al.

This research highlights the sexual health challenges faced by adult patients with childhood augmentation cystoplasty due to spina bifida. Key concerns like incontinence and body image significantly impact self-confidence and sexual activity, especially among females. The study calls for regular discussions on these topics and underscores the need for better patient-reported outcome measures. Conducted by a team of experts including Beatriz Bañuelos Marco and Manuela Hiess, this paper aims to shed light on an often ignored aspect of patient care.

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Abstract

This paper investigates the often-overlooked sexual health challenges faced by adult patients who underwent augmentation cystoplasty in childhood for spina bifida. Experts and a patient group representative were consulted to address issues related to diversion, incontinence, body image, fertility, and specific concerns for males and females. The consensus highlights lack of self-confidence and incontinence as major barriers to sexual activity. Cosmesis of the stoma and scars influenced self-esteem more in females. The authors emphasize the need for routine discussions about sexual concerns with postpubertal patients and advocate for further research to develop better patient-reported outcome measures (PROMs).

Publisher

Springer Nature

Published On

Oct 10, 2020

Authors

Beatriz Bañuelos Marco, Manuela Hiess, Raimund Stein, Ricardo Gonzalez, Anja Lingnau, Dan Wood, Anna Radford, Bernhard Haid

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