Medicine and Health
Immortal data: a qualitative exploration of patients’ understandings of genomic data
K. Lyle, S. Weller, et al.
This research by Kate Lyle, Susie Weller, Rachel Horton, and Anneke Lucassen delves into the unique nature of genomic data and its implications for patients and their families. The concept of genomic data being 'immortal' raises critical ethical considerations, which this study examines through qualitative research, emphasizing the need for better communication in healthcare settings.
~3 min • Beginner • English
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