Medicine and Health

Demographic and prosocial intrapersonal characteristics of biobank participants and refusers: the findings of a survey in the Netherlands

R. Broekstra, J. Aris-meijer, et al.

This study reveals the crucial role of health-related values and trust in government in influencing participation decisions in biobanks, based on research by Reinder Broekstra, Judith Aris-Meijer, Els Maeckelberghe, Ronald Stolk, and Sabine Otten. Dive into the insights that can transform recruitment strategies for biobank participation.

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Abstract

This study investigated the differences between participants (n = 2615) and refusers (n = 404) of the Lifelines biobank in the Netherlands. Results showed that health-related values and trust in the government significantly influenced participation decisions. Lack of these factors was a major determinant of non-participation. General prosociality or trust in researchers beyond the biobanking context did not significantly differentiate participants and refusers, highlighting the context-specific nature of biobank participation decisions. These findings suggest that recruitment strategies should emphasize health-related values and address trust concerns, particularly regarding collaborations between data repositories and commercial companies.

Publisher

Springer Nature

Published On

Jul 31, 2020

Authors

Reinder Broekstra, Judith Aris-Meijer, Els Maeckelberghe, Ronald Stolk, Sabine Otten

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