This study investigated the differences between participants (n = 2615) and refusers (n = 404) of the Lifelines biobank in the Netherlands. Results showed that health-related values and trust in the government significantly influenced participation decisions. Lack of these factors was a major determinant of non-participation. General prosociality or trust in researchers beyond the biobanking context did not significantly differentiate participants and refusers, highlighting the context-specific nature of biobank participation decisions. These findings suggest that recruitment strategies should emphasize health-related values and address trust concerns, particularly regarding collaborations between data repositories and commercial companies.
Publisher
Springer Nature
Published On
Jul 31, 2020
Authors
Reinder Broekstra, Judith Aris-Meijer, Els Maeckelberghe, Ronald Stolk, Sabine Otten
Tags
biobank
participation
trust
health-related values
non-participation
recruitment strategies
government
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