Insufficient social support for fathers of children with developmental disorders

Many parents carry exceptional burdens in childcare, especially while raising children with developmental disabilities (DD). Japanese local governments provide considerable support to mothers and their families, which indicates that such services are in high demand. However, similar assistance for fathers in the context of children with DD may be lacking. This study evaluated the social support status of fathers raising children with DD towards considering increased paternal support. Multiple-choice questionnaires on support for information (6 items), emotion (7 items), evaluation (3 items), and daily living (3 items) were completed by Japanese fathers (n = 85) and mothers (n = 101) of children with DD attending rehabilitation facilities. Regarding information support, fathers answered “spouse” as the main provider for all items, which differed significantly from mothers. For emotional support, fathers significantly more frequently received assistance from their workplace and spouse. Daily living support was also significantly more predominant for fathers in the workplace. Evaluation support sources were comparable between the respondent groups, with “spouse” being most frequently answered by fathers. These findings indicate a deficiency in external resources for fathers and support a need to consider increasing non-spouse resources and social support for fathers in raising children with DD.

Shiori Ishida, Hiromi Okuno, Hisato Igarashi, Hiroko Takahashi