Psychology

A qualitative interview study on quality of life and ageing experiences of autistic adults

H. E. Viner, N. Yuill, et al.

This qualitative study delves into the ageing experiences and quality of life of autistic adults aged 40 and above in the UK and Luxembourg. The research, conducted by Hannah E. Viner, Nicola Yuill, Andreia P. Costa, Holly Radford, and Anna E. Kornadt, reveals critical insights into the unique challenges faced by this community, including issues of diagnosis, social connection, autonomy, systemic barriers, and vulnerability to discrimination.

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Abstract

This qualitative study investigated the quality of life (QoL) and ageing experiences of 16 autistic adults (aged 40+) from the UK and Luxembourg. Semi-structured interviews revealed five key themes contributing to QoL: (1) the pivotal role of diagnosis in self-understanding and acceptance; (2) the importance of connection with others, acknowledging the finite nature of social energy; (3) the need for autonomy over space and time to create optimal environments; (4) the systemic barriers posed by 'paperwork of life'; and (5) vulnerability to discrimination, harassment, and bullying. The study highlights autism-specific aspects of QoL and the interplay between ageing and autism's impact on QoL.

Publisher

Communications Psychology

Published On

Oct 25, 2024

Authors

Hannah E. Viner, Nicola Yuill, Andreia P. Costa, Holly Radford, Anna E. Kornadt

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